If you could say one thing to parents who have just received the diagnosis you once received for your child, what would that be?

(Please mention the particular diagnosis if needed for clarity … or perhaps you have words of general encouragement to share)

 

7 Responses to “If you could say one thing to parents who have just received the diagnosis you once received for your child, what would that be?”

  1. Cindy Larson Cindy Larson

    I would tell that sweet parent that you can mother your special child perfectly and it will enable you to mother your other children more perfectly. Your home will be filled with a spirit and added measure of blessings and you will be given extra angels at your disposal to help you through your journey. You will meet the most amazing people because of this journey with the most beautiful hearts that you would not have otherwise met and no other experience in this life will bring you, your husband and children closer to heaven than this.

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  2. Cindy Price

    The first thing I like to tell other parents is “Congratulations on your baby”! I want them to know that all babies are special and that even though their baby may face challenges, even difficult challenges in life, they are first and foremost a precious baby, a child of God and something to celebrate! I feel like sometimes we get so caught up in the diagnosis that we forget that the birth of a baby is a wondrous miracle. I also tell parents to be prepared to love like you have never loved before!

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    • Lisa Riska Lisa Riska

      What an excellent insight! “Congratulations” is not something parents hear very often in such circumstances. By celebrating their child’s birth you “re-frame” the entire situation.

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    • Annie Boxell Annie Boxell

      SUCH AN EXCELLENT POINT. Wow, CONGRATULATIONS. Amen sister

      Reply
  3. Susan Greer Susan Greer

    I would say…. hang on to your hat because you are in for the ride of your life! This reminds me of a Steve Martin movie. He is at a school play with his family and his child is on stage and begins a string of events that “ruins” the school project. He is getting all up tight about it and he looks over at others enjoying the “moment”. Well if life were a roller coaster ride (and I hate roller coasters), having a disabled child would be one heck of a ride. In a moment, the paradigm which you thought held you up in life will crumble and you will take some time to build a new outlook. When you do you will discover that while some people go through life with God using sandpaper to shape them, he uses a chisel on you. Why – I don’t know. I think some of us signed up for the advanced learning course. All I can say is I went through many many adjustments. I took 8 years to get far enough to look back and see that I liked myself much better. I thought God was a better artist than I was. Stay close to Him; never give up; and let the artist work His magic in you. My daughter is 24 years old. I am not the person I would have been. Someday I will look her in the eyes and she will knowingly smile and say, “You’re Welcome”.

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  4. Rebekah Peterson Rebekah Peterson

    Yes, “Congratulations” is a wonderful way to start. Then I’d tell them that it’s okay. If they’ll allow Him, the Lord will make them equal to the many tasks that are still coming. Hang onto your faith that He only has your best interests at heart, and the best interests of your child. That will make it so you can see and enjoy your child as the gift that He meant him to be, no matter how long or short you get to have him. It doesn’t mean it doesn’t hurt. Sometimes (often?) life does hurt. And hurting is okay. Our God has big shoulders and we shouldn’t be afraid to cry on them. But with the stretching and hurting comes growth. And it is such wonderful growth. Even knowing that my son will pass away long before we’re ready for him to go, I wouldn’t trade any of this experience, none of it.

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  5. AmandaJ

    When my child was 18 months, he had a seizure and started losing skills from there. Eventually he leveled out and we had a starting place. He was diagnosed with autism at 3 years old. I was faced with the fact that my child might be a baby for the rest of his life. His autism was so severe at the time that that’s what we expected. As scary as it can be to have that land on your lap, my life would be far less meaningful without this beautiful child Heavenly Father blessed us with. Yes, it changed our life direction and lots of things were put on hold. I wouldn’t call it a sacrifice, though, because I loved him so and I spent so much time teaching him. I guess I would say to other parents during that time that you’re having babies, take it to heart that you don’t get to decide who your child will be when he/she is born. Your child will be unique and beautifully divine. You will see this if you’re able to take a view from Heavenly Father’s eye. Each child you have was given you and you have the divine nature to care for and raise your child. It’s in you even when you feel like it isn’t. Heavenly Father is with you. Believe you are a child of God, believe in your divine nature, believe in hope. My child is no longer a baby, but a young man who is capable of so many things. Just take it a day at a time and hold to the rod. You can’t afford to let go.

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