Welcome

   

Miranda Marrott, one of our regular Liahona Project authors, has this time written a wrenching and poignant remembrance of years ago before a diagnosis explained the the unpredictability and emotional chaos with which she was dealing.  While her family’s challenges were eventually identified as Autism Spectrum issues as well as others,  (see her Bio), most parents that frequent this site will identify with an early period of heartbreaking confusion and denial.  I know I do.

Be moved by Snapshot – Life on the Spectrum:  PRE-Diagnosis.


Tender Languor

Families of children with Down Syndrome will surely be touched by this interesting and … well … “tender” appreciation of a particular physical characteristic of their loved one. “She has a softness in her whole body that gives the gentlest … Continued

Five Good Things

We have a tradition in our family.  It’s called 5 Good Things! It is said that if a person hears 5 good things a day about themselves from people whose opinion means something to them,  their self esteem and personal … Continued

What Not to Say

Every parent of a special needs child has probably had the experience of someone saying just the worst possible thing to them.  Presumably (thinking charitably), they feel they are being comforting and supportive … when their words have the very opposite effect. Perhaps because Autism is still … Continued

Personal Essays

Looking Up

Some days, as much as you want to be strong and capable, it just doesn’t work out that way.  Whatever is on your plate at the moment, like chronic fatigue, or ptsd, or whatever fiery furnace is the lot of … Continued

Temple Tuesday

The Counselor in the Bishopric reverently concluded his testimony and said, “Amen”.  A resounding evangelical “Amen” rose up from the congregation.  I didn’t need to look to know that it was my son who shouted it. Raising a special needs … Continued

Dear UPS Guy

Dear UPS Guy, It’s early Friday evening, and I know we are both tired.  But in your effort to save yourself some steps, you prevented someone who is unable to take any steps at all from going into a toy … Continued

What Will You Be When You Grow Up?

A few days ago Elise graduated from Kindergarten. As our family passes through certain milestones with Elise they can be difficult. (What seemed like autism eventually turned into looking like Rett Syndrome.) We certainly have moved passed wishing …

The Red Sea Place

Have you come to the Red Sea place
___ in your life
Where in spite of all you can do,
There is no way out.
There is no way back.
There is no other way but through.

Orange Socks

Currently, most pregnancies where the fetus is diagnosed with Down syndrome are terminated through abortion.  Today, Down syndrome and several other disabilities can be detected through genetic and other testing “in utero”.  When the news is given, often these shocked … Continued

Watching from the Fringe

What do you do for those days when it suddenly hits you that your child may never have the life experiences that you hoped for him?  That he might always be on the sidelines, watching others from the fringe? I know … Continued

The Non Baptism Day

A high pitched squeal of laughter pierces the otherwise reverent Sacrament Meeting as my son, Cohen, races at full speed towards the stand.  My husband’s feet are heavy and loud as he sprints after him.  Besides a few suppressed smiles, … Continued

Noble Spirit

David’s body has grown bigger and stronger, but his mind is still behind, trapped inside the prison of autism. His ability to communicate is severely limited and his functioning is impaired by odd behaviors, emotional outbursts and limited understanding. Even … Continued

It’s Okay To Be A Lower Light

Sometimes (often?) we feel like we have to know it all, do it all, be it all. Especially when you parent a medically fragile child, the feeling creeps in.  Do I really know enough? Can I do it?  I have … Continued

Not Sorry

When my daughter Callie was diagnosed with Spinal Muscular Atrophy a couple of years ago, we received an outpouring of support and love from our friends and family.  Everyone was trying to be so kind and considerate of our feelings.  However, one sentiment that … Continued