Certainly, there are plenty of websites out there that deal with special needs children. The purpose of this site is to have a place where Latter-day Saints can … Read more
Miranda Marrott, one of our regular Liahona Project authors, has this time written a wrenching and poignant remembrance of years ago before a diagnosis explained the the unpredictability and emotional chaos with which she was dealing. While her family’s challenges were eventually identified as Autism Spectrum issues as well as others, (see her Bio), most parents that frequent this site will identify with an early period of heartbreaking confusion and denial. I know I do.
Be moved by Snapshot – Life on the Spectrum: PRE-Diagnosis.
Families of children with Down Syndrome will surely be touched by this interesting and … well … “tender” appreciation of a particular physical characteristic of their loved one. “She has a softness in her whole body that gives the gentlest … Continued
We have a tradition in our family. It’s called 5 Good Things! It is said that if a person hears 5 good things a day about themselves from people whose opinion means something to them, their self esteem and personal … Continued
Every parent of a special needs child has probably had the experience of someone saying just the worst possible thing to them. Presumably (thinking charitably), they feel they are being comforting and supportive … when their words have the very opposite effect. Perhaps because Autism is still … Continued
He heaved between sobs, opening the car door and vomiting right there in the car line. I prayed that no one had noticed. “Okay, okay,” I soothed him, patting his back. “It’s okay. Put your seat belt back on, we’ll … Continued
Some days, as much as you want to be strong and capable, it just doesn’t work out that way. Whatever is on your plate at the moment, like chronic fatigue, or ptsd, or whatever fiery furnace is the lot of … Continued
The Counselor in the Bishopric reverently concluded his testimony and said, “Amen”. A resounding evangelical “Amen” rose up from the congregation. I didn’t need to look to know that it was my son who shouted it. Raising a special needs … Continued
Dear UPS Guy, It’s early Friday evening, and I know we are both tired. But in your effort to save yourself some steps, you prevented someone who is unable to take any steps at all from going into a toy … Continued
A few days ago Elise graduated from Kindergarten. As our family passes through certain milestones with Elise they can be difficult. (What seemed like autism eventually turned into looking like Rett Syndrome.) We certainly have moved passed wishing …
Have you come to the Red Sea place
___ in your life
Where in spite of all you can do,
There is no way out.
There is no way back.
There is no other way but through.
Currently, most pregnancies where the fetus is diagnosed with Down syndrome are terminated through abortion. Today, Down syndrome and several other disabilities can be detected through genetic and other testing “in utero”. When the news is given, often these shocked … Continued
What do you do for those days when it suddenly hits you that your child may never have the life experiences that you hoped for him? That he might always be on the sidelines, watching others from the fringe? I know … Continued
A high pitched squeal of laughter pierces the otherwise reverent Sacrament Meeting as my son, Cohen, races at full speed towards the stand. My husband’s feet are heavy and loud as he sprints after him. Besides a few suppressed smiles, … Continued
David’s body has grown bigger and stronger, but his mind is still behind, trapped inside the prison of autism. His ability to communicate is severely limited and his functioning is impaired by odd behaviors, emotional outbursts and limited understanding. Even … Continued
Sometimes (often?) we feel like we have to know it all, do it all, be it all. Especially when you parent a medically fragile child, the feeling creeps in. Do I really know enough? Can I do it? I have … Continued
When my daughter Callie was diagnosed with Spinal Muscular Atrophy a couple of years ago, we received an outpouring of support and love from our friends and family. Everyone was trying to be so kind and considerate of our feelings. However, one sentiment that … Continued